Stuffsoup – a little blog with a lot of "stuff"


When worry comes

Posted in Down syndrome,parenting by stuffsoup on December 12, 2010

I don’t really consider myself much of a worrier. I am more of a glass-is-half-full, it’ll-all-work-out kind of gal. To the point that my dh has asked me repeatedly what color the sky is in my world. (I always assure him it is very rosy and that the skies are a clear, clear blue.)

But, sometimes an overactive imagination or something that is a real unknown to me will get me… and I can worry. Like yesterday, I was worried about my daughter. Her education. Her opportunities. Her progress. You see, we have a meeting with nearly a dozen school people (teachers, therapists, etc.) on Monday to discuss, well, everything. Or at least it was starting to feel like everything.

When your child is on an IEP (individualized education plan), which basically means that they are receiving special education services; every 3 years they test, evaluate, observe, and analyze the child to determine placement, continuation of services (or not), etc., etc., etc. and that time is upon us.

It sure seems that there is more known about a child with special needs than nearly any typical child. They are tested, tracked, and evaluated nearly constantly. And, to a certain degree, that has to be done to know how to help them continue to learn and really I’m all for more information rather than less. I think I’d like to know EVERYTHING if it were actually possible (yes, even the date of my own death… morbid, I know).

So, it is probably the not-knowing, what-if part that gives me pause. What if she is doing so well that she could lose services? and scarier than that… what if she’s not? She’s lost service time already and I’m glad because that means she’s doing well and I’m not glad because that means she’s not getting as much help. It feels like a weird place and yesterday was like that. I just had to take a deep breath (ok, maybe a few) and in the spirit of full disclosure, shed just a couple of tears — which isn’t so unusual for me, I guess, and talk to someone else who’s been there, also not so unusual for me since I find other perspectives helpful and connections reassuring.

Now to adopt my theme song for the weekend. Que sera, sera… whatever will be, will be. Since, however it goes on Monday, it’ll all work out… with glasses half-full.

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One Response to 'When worry comes'

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  1. Cristiana christiansen said,

    Hope your meeting went well, whenever I see her at school she seems always happy and full of energy:) reading your article made me think about how we worry about things in life and just truly wish the best in our kids lifes and education. On another topic it will be interesting to hear a little about how little brother’s life is impacted? Do you believe things are different for him in any aspect? Glad to see blogs from u out there!


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